SUN-STAR PHOTO BY BEA AHBECK
Emily Sanda, 6, sits with her mother Rachel Sanda in her grandmother Elizabeth Schultz' home in Atwater, Calif. Wednesday, June 24, 2009. Emily, who was born in Merced, has Niemann-Pick Type C, or NP-C, an extremely rare genetic disorder for which there is no cure.
SUN-STAR PHOTO BY BEA AHBECK Emily Sanda, 6, sits with her mother Rachel Sanda in her grandmother Elizabeth Schultz' home in Atwater, Calif. Wednesday, June 24, 2009. Emily, who was born in Merced, has Niemann-Pick Type C, or NP-C, an extremely rare genetic disorder for which there is no cure. Merced Sun-Star
SUN-STAR PHOTO BY BEA AHBECK Emily Sanda, 6, sits with her mother Rachel Sanda in her grandmother Elizabeth Schultz' home in Atwater, Calif. Wednesday, June 24, 2009. Emily, who was born in Merced, has Niemann-Pick Type C, or NP-C, an extremely rare genetic disorder for which there is no cure. Merced Sun-Star

Parents live knowing rare disease will take daughter from them

June 25, 2009 12:10 AM

UPDATED October 19, 2009 10:52 AM

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